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NHF 2022 Red Tie Soiree

Join us on October 26, 2022

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FUNDRAISING

On October 15, the Red Tie Soiree, a yearly gala hosted by the National Hemophilia Foundation, was held in-person for the first time in three years. The community event was held for the first-time on the West Coast, welcoming guests to the historic Julia Morgan Ballroom in San Francisco. With over 200 in attendance, the event raised $215,000 for the inheritable blood and bleeding disorders community. Thank you so much to those who attended and donated, it's amazing what you were able to accomplish in one night. 

While we were thrilled to to have raised more than we did last year, we set out on an ambitious goal to raise $275,000 for our community. We need your help to reach our goal. There's still time to raise critical funds to ensure no one has to face diagnosis alone. Please donate today to help us close the gap to reach everyone in our community. 


EVENT RECAP 

This year’s event featured powerful stories showcasing the walks of the inheritable blood and bleeding disorders community. It showcased partnership, progress, and hope while sharing the journeys of three special honorees. 

CEO of the National AIDS Memorial Grove, John Cunningham, received the Inspiration Award for his ongoing partnership and support of the many community members and families impacted by HIV/AIDS. With the loss of half of the hemophilia community in the span of ten years during the AIDS crisis, John graciously and generously took our community under his wings and flawlessly honored those we lost in the National AIDS Memorial Grove. NHF thanks John for his inclusivity of our community, and for offering us a space to grieve those we have lost. You can learn more about John and his award in this video.

The Ambassador Award was given to Karen Fulton Holine – whose son Jason passed away from HIV/AIDS complications from a blood transfusion – and Leah Ogden Adams, an advocate for community awareness. The story that ties these two incredible women together showcases not only community, but perseverance, partnership, and love. Through honoring Jason, Karen and Leah have worked to support young adults in the inheritable blood disorders community with the Jason Fulton Memorial Fund. You can learn more about Karen, Leah and their award in this video.

Finally, the Taylor family of Wyoming – parents Lucas and Maggie, and son Teddy (who was diagnosed with severe hemophilia A at birth) - shared their powerful story of navigating care in a rural community. . The Taylor family touches on a topic that impacts countless members of the inheritable blood disorders community: From access and care, to parenting and treating a young child with severe hemophilia, the Taylor’s gracefully shared their story to help bring together the community and show that no matter where you are, you’re never alone. Learn more about the Taylor Family in this video.

The Red Tie Soiree hosted an opportunity to connect with community members, and an entertaining program that included a silent auction. NHF thanks those that came and celebrated at the event, and those who honored it from afar. Donations from the event support NHF’s investment in research and paves the way for a deeper understanding of these conditions, as well as better treatment options for those who need them.


ABOUT THE RED TIE SOIREE

The Red Tie Soiree is the National Hemophilia Foundation's (NHF) signature fundraising gala. During an evening of camaraderie, support, and celebration, the Soiree celebrates the amazing, unparalleled work done together by NHF, its stakeholders, and the inheritable blood and bleeding disorders community at large-- while raising critical funds for mission priorities.

Funds raised through the Soiree by our generous donors enable NHF to make important contributions towards cutting-edge research in the treatment of inheritable bleeding disorders. The Soiree also supports NHF's work to provide vital resources and education to individuals affected by bleeding disorders, support advocacy efforts on behalf of the bleeding disorders community, and provide support to NHF's nationwide network of chapters.

CONTACT US

For more information, please contact Riley Breen, Development Specialist, [email protected].

 

 

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